I thought I'd start a new topic about this as it's a bit lengthy for our daily chat.
I attended the local Lymphoedema clinic a few yrs ago & had treatment for about 3yrs until I got the swelling down in both my legs. Water retention meds don't make any difference for people with this condition. I was discharged from the clinic as they were cost cutting 'under orders' which they were very upset about.
I have to wear full length compression stockings & did this until a consultant ( for tummy or something) said he didn't know why I wore them as it was the least swelling he'd seen. I stupidly stopped wearing them & now my knees have really swollen. The skin tissue changes too. I cannot have a blood pressure cuff on either leg as it causes so much pain.
As soon as the nurse put the knee support on yesterday I felt the pressure rise straight away. Consequently I'm being redirected to my dr then onto the Clinic. I'm hoping they can help me with lymphatic drainage massage, maybe strapping to get me back to where I was before I took notice of the ill informed consultant.
Oma in answer to your reply post...
'Nana my best friend has Lymphoedema in both legs they are very large and some days shes in agony ,
She has them in special strappings and it effects her feet too so has to have special shoes from the Lympho clinic .
It makes walking difficult as does sleeping , a very uncomfy thing to have , I sympathise with you .'
I feel for your friend Oma, I really do. Poor thing. It seems as tho' it's most common in, not all, patients who have recovered from cancer treatment.... involving lymph glands etc. My sister has had swelling in her arm & hand since her breast cancer treatment. She ignores it. Mine arose from having so many abdominal surgeries.
As you say Oma, your friend finds it hard to sleep. Part of my difficulty sleeping is due to this too. I try really hard not to let my illnesses stop me from being a Gran who joins in games etc. At Christmas my GS1 shouted 'Chase me' & I did. Down I went like a beached whale. The pain in my (already painful) knee was excruciating but you soldier on so as not to worry the little ones. It was the lymphoedema + poorly knee that did it.
I know 'wishing' something better doesn't work but I'm at the stage now where I just 'wish' I was well to just get on with life. I don't want sympathy in writing this but to give a little information what lymphoedema is & how it affects your life.
I attended the local Lymphoedema clinic a few yrs ago & had treatment for about 3yrs until I got the swelling down in both my legs. Water retention meds don't make any difference for people with this condition. I was discharged from the clinic as they were cost cutting 'under orders' which they were very upset about.
I have to wear full length compression stockings & did this until a consultant ( for tummy or something) said he didn't know why I wore them as it was the least swelling he'd seen. I stupidly stopped wearing them & now my knees have really swollen. The skin tissue changes too. I cannot have a blood pressure cuff on either leg as it causes so much pain.
As soon as the nurse put the knee support on yesterday I felt the pressure rise straight away. Consequently I'm being redirected to my dr then onto the Clinic. I'm hoping they can help me with lymphatic drainage massage, maybe strapping to get me back to where I was before I took notice of the ill informed consultant.
Oma in answer to your reply post...
'Nana my best friend has Lymphoedema in both legs they are very large and some days shes in agony ,
She has them in special strappings and it effects her feet too so has to have special shoes from the Lympho clinic .
It makes walking difficult as does sleeping , a very uncomfy thing to have , I sympathise with you .'
I feel for your friend Oma, I really do. Poor thing. It seems as tho' it's most common in, not all, patients who have recovered from cancer treatment.... involving lymph glands etc. My sister has had swelling in her arm & hand since her breast cancer treatment. She ignores it. Mine arose from having so many abdominal surgeries.
As you say Oma, your friend finds it hard to sleep. Part of my difficulty sleeping is due to this too. I try really hard not to let my illnesses stop me from being a Gran who joins in games etc. At Christmas my GS1 shouted 'Chase me' & I did. Down I went like a beached whale. The pain in my (already painful) knee was excruciating but you soldier on so as not to worry the little ones. It was the lymphoedema + poorly knee that did it.
I know 'wishing' something better doesn't work but I'm at the stage now where I just 'wish' I was well to just get on with life. I don't want sympathy in writing this but to give a little information what lymphoedema is & how it affects your life.
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